The Skraban-Deardorff Syndrome Foundation (SKDEAS) will be having its 4th biannual Family Meeting in July 2024. The SKDEAS Family Meeting provides updates on the clinical management as well as the latest research findings for Skraban-Deardorff Syndrome. 

The meeting serves to connect families of individuals with the condition to clinicians who manage this condition and researchers who study it. 

As an added benefit, the Family Meeting gives the rare opportunity for individuals with Skraban-Deardorff Syndrome to connect with one another and for parents to form bonds that they otherwise may not be able to in their own communities.