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WELCOME

We are so glad you are here.

Let us introduce ourselves.

Newly diagnosed and

have questions?

We are so glad you found us. 

Visit our Welcome page

Help Pave the Way to a Brighter Future!

Want to make a gift to help fund the important research that is necessary to help these beautiful children? Please make your generous, tax-deductible contribution by clicking the button below.

Smiles IncludedNavigating through life with our rare disease superheroes

This podcast features guests and experts across the rare disease spectrum that highlight how to bring out the best in our rare kids and showcase that we are not alone, but part of a great community of people supporting our rare children. 

Miss something in the audio interview? Want to go back and jot a note down? To ensure communication access, we've had our episodes transcribed and made available for you to view, read, and even translate into your native language.

Emily&Joe.jpeg
“Receiving the diagnosis was a
mixture of relief and grief.”

Emily Beauclair, mother of Joe (4), Connecticut, US

CONTACT US

Skraban-Deardorff Syndrome Foundation

14039 Hwy 74 E

Suite A6 #123

Indian Trail, NC 28079

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The SKDEAS Foundation meets monthly and we'd love to have you join. We meet virtually on the second Monday of the month from 12:00pm-1:00pm Eastern Time (Holidays will affect scheduling). To join us, click General Meeting Sign Up below.

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