Smiles Included: Navigating through life with our rare disease superheroes
This podcast features guests and experts across the rare disease spectrum that highlight how to bring out the best in our rare kids and showcase that we are not alone, but part of a great community of people supporting our rare children.
“Receiving the diagnosis was a
mixture of relief and grief.”
Emily Beauclair, mother of Joe (4), Connecticut, US
CONTACT US
Skraban-Deardorff Syndrome Foundation
14039 Hwy 74 E
Suite A6 #123
Indian Trail, NC 28079
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The SKDEAS Foundation meets monthly and we'd love to have you join. We meet virtually on the second Monday of the month from 12:00pm-1:00pm Eastern Time (Holidays will affect scheduling). To join us, click General Meeting Sign Up below.
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