RARE DISEASE DAY
Thank You For Lighting Up the World for
Rare Disease Day 2024
Understanding Rare Disease Day
Rare Disease Day, observed on February 29, 2024, is more than just a rare date on the calendar; it's a global movement. This day is dedicated to raising awareness for over 7,000 known rare diseases, affecting millions worldwide. It's a day when landmarks and buildings across the globe light up in vibrant colors, symbolizing hope and unity for the rare disease community. Initiated in 2019 with iconic landmarks like the Empire State Building, this tradition continues to grow, illuminating the sky in pink, green, blue, and purple - the colors of Rare Disease Day.
Why the Zebra?
The zebra, chosen as the mascot for rare diseases, symbolizes the unexpected in medicine - the uncommon answers. It's a reminder that though rare diseases might be infrequent, they are significant. This Rare Disease Day, we embrace the motto: "Alone we are rare, together we are strong." Join us in showing our stripes, supporting the 300 million people worldwide living with a rare disease, and making their journey less isolating.
Spreading Awareness
The SKDEAS Rare Disease Day 2024 toolkit served as an invaluable resource, guiding efforts to make a significant impact. It was complete with creative ideas, engaging graphics, and effective strategies designed to spread smiles and raise awareness about Skraban-Deardorff Syndrome. The toolkit enabled the seamless integration of SKDEAS into social media messaging, promoting the use of hashtags such as #skdeas, #RareDiseaseDay, and #ShowYourStripes. It empowered individuals to share their stories, elevate awareness, and express gratitude towards those who have supported their journey with rare diseases. Through its comprehensive contents, the toolkit played a pivotal role in amplifying the voices of the rare disease community and fostering a broader understanding of their challenges and triumphs.
Impact in Pictures: SKDEAS Community Photo Gallery
Explore our engaging photo gallery that showcases the incredible impact made possible by the SKDEAS Rare Disease Day 2024 toolkit. Each image is a testament to the resilience, solidarity, and hope within the community, emphasizing the awareness raised about Skraban-Deardorff Syndrome (SKDEAS). These photos illustrate the power of collective action in fostering understanding and demonstrating the community's commitment to making a difference. Witness the beauty and impact of these efforts, one photo at a time.
