The SKDEAS Foundation is honored to recognize SorrisInvincibili – Sindrome Skraban-Deardorff APS, a dedicated organization founded in Italy that has become an invaluable partner in the global effort to support individuals with Skraban-Deardorff Syndrome. Their commitment to research, family support, autonomy, and advocacy has made a profound impact on our shared mission.

​

From funding research and fostering collaborations with scientists across Europe and the U.S. to providing critical family resources like psychological support, financial assistance for medical needs, and guidance through complex healthcare systems, their work is changing lives. Their focus on promoting independence, including developing communication tools, training educators, and advocating for workplace inclusion, speaks to the heart of what it means to empower individuals with Skraban-Deardorff Syndrome. And beyond these initiatives, SorrisInvincibili has built a true community—one where families find connection, support, and hope across borders.

​

We are deeply grateful for their partnership and for the dedication of their team, donors, and volunteers. Their passion and hard work remind us that rare does not mean alone—together, we are making a lasting difference.