This brochure was created for the people who are walking this journey—parents, relatives, educators, therapists, and friends—who want to better understand and support individuals with Skraban-Deardorff Syndrome.
Rather than focus on the basics, this piece was designed to deepen awareness and equip others to be more confident and compassionate allies. It includes relatable language about daily life, helpful insights from families, and practical ideas for support in school, therapy, and community settings. It’s the kind of resource you can hand to a teacher, bring to a medical appointment, or share with someone who wants to help but isn’t sure how.
The brochure was thoughtfully developed by the SKDEAS Foundation with input from families and professionals who understand the realities of living with Skraban-Deardorff Syndrome. Every section was shaped by real experiences—what’s helpful to share with teachers, what’s important for therapists to know, and what language helps loved ones truly understand. Our goal was to create something practical, approachable, and meaningful for the people who support our community every day.
Want to request brochures? You'll find the form below.
Who Is This Brochure For?
This resource is for anyone supporting someone with Skraban-Deardorff Syndrome. Whether you are:
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A parent or caregiver looking to share clear, helpful information,
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A teacher or school staff member supporting a student with SKDEAS,
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A therapist, clinician, or specialist learning about the condition in practice,
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A relative, friend, or neighbor wanting to better understand,
—this brochure can help bridge the gap between curiosity and compassion. It’s meant to spark conversations, offer reassurance, and provide practical ways to be supportive.
What's Inside?
The SKDEAS brochure was designed to be informative without overwhelming—something you can easily share, revisit, and rely on. Inside, you’ll find:
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A plain-language overview of Skraban-Deardorff Syndrome
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Everyday examples of how SKDEAS may impact learning, behavior, and communication
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Common developmental traits seen across our community
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An introduction to the WDR26 gene and its role
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Suggestions for creating supportive environments at home, in school, and in therapy
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A snapshot of the SKDEAS Foundation’s work in advocacy, education, and connection
Each section was created with care to reflect lived experience and to help others step into this space with greater understanding.
How To Request Brochures
We’re happy to provide SKDEAS brochures at no cost to families, educators, clinicians, and others in our community. Whether you’re sharing with a school team, clinic, extended family, or local organization, we’ll do our best to meet your needs.
To request brochures, just fill out the form below with your name, mailing address, email, and an estimate of how many brochures you'd find helpful.
Language Note: Brochures are currently available in English only. We hope to offer additional language options in the future as resources allow.
Shipping Information: We currently ship brochures within the U.S. and internationally. No payment is required, but we want to be transparent about the real costs involved. Printing costs average about $0.21 per brochure, and domestic shipping typically ranges from $1.36 to $11.00, depending on the quantity requested.
International shipping costs vary, and delivery may take additional time. If you’re in a position to support these efforts, we always welcome donations—but they are never expected.
Support This Work
Thanks to the generosity of our community, the SKDEAS Foundation is proud to provide brochures at no cost to families, educators, and care teams around the world. Printing and shipping do come with real costs—and every contribution helps us keep these resources available and accessible.
If you’d like to support brochure distribution, we welcome donations of any amount. Your generosity helps us reach more families, more schools, and more providers with tools that truly make a difference.
Brochure Request Form
By requesting brochures, you agree to receive occasional email communications from the SKDEAS Foundation. You can unsubscribe at any time.
