The SKDEAS Family Meeting is not just an event; it's a movement. Every two years, families, researchers, and supporters from around the globe come together to share, learn, and inspire. This year, we gathered in Philadelphia to continue our journey toward understanding and advocating for Skraban-Deardorff Syndrome.
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How to Show Your Support
Your continued support remains essential as we build on the success of our recent Family Meeting. Every contribution, no matter its size, helps us sustain and expand our efforts. Here's how your generosity makes a difference:
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Event Follow-Up: Enhancing post-event materials and resources, ensuring all participants can revisit the valuable insights shared.
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Ongoing Research and Education: Supporting continuous education and the dissemination of the latest research findings to our community.
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Community Support: Providing ongoing resources and assistance to families, helping them navigate daily challenges with confidence.
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Future Planning: Preparing for future meetings and events to keep our community connected and informed.
By donating, you play a crucial role in our journey, helping to ensure that every family touched by Skraban-Deardorff Syndrome has the resources and support they need to thrive.