Celebrate World SKDEAS Day – July 6!
World SKDEAS Day is a moment to celebrate our growing global community and raise awareness of Skraban-Deardorff Syndrome. Whether you're celebrating at home or traveling this summer, we’d love to see where you are in the world!
As part of World SKDEAS Day, we’re highlighting the first published article that introduced Skraban-Deardorff Syndrome to the medical community. This 2017 study, available through the National Institutes of Health, laid the foundation for understanding the condition by documenting its key features and genetic basis. You can read the full article here: Skraban-Deardorff Syndrome – 2017 Study (NIH).
Here’s how to join the celebration:
1. Download and print the sign below or click here
2. Write your location in the box
(City, state, country — wherever you are!)
3. Take a photo holding the sign
Tip: Use a favorite local landmark, view, or neighborhood spot as your backdrop.
Bonus: Wear your World SKDEAS Day shirt if you ordered one!
4. Share your photo with the hashtag #WorldSKDEASDay
When you post your photo, feel free to share a message or what World SKDEAS Day means to you!
5. Add our SKDEAS frame to your Facebook profile picture: click here to access*
* Please note, you must be logged into Canva (create a free account if needed) and make a copy of the design. You will then be able to upload a photo and put into the frame element - the scene with the cloud.
Prefer to upload instead of share on social?
Submit below
