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Privacy Policy


Effective date: January 1, 2024



SKRABAN-DEARDORFF SYNDROME FOUNDATION (“us”, “we”, or “our”) operates the website (hereinafter referred to as the “Service”).


This webpage informs you of our policies regarding the collection, use, and disclosure of personal data

when you use our Service and the choices you have associated with that data.


We use your data to provide and improve the Service. By using the Service, you agree to the collection

and use of information in accordance with this policy. Unless otherwise defined in this Privacy Policy, the

terms used in this Privacy Policy have the same meanings as in our Terms and Conditions, accessible from



Your personal information will be held in strict confidence. We use your information only for its intended

business purpose. We do not sell or trade your information to other organizations or individuals.



If you choose to send us email, we may retain the contents of your email message, our reply and your

email address as part of our ongoing customer service efforts. We reserve the right to contact you after

you have contacted us and may send future email and/or surveys to you about SKRABAN-DEARDORFF SYNDROME FOUNDATION. You may notify us via email if you wish to discontinue electronic communication.



We keep your personal information as accurate, complete, and up to date as is required to fulfill the purpose(s) for which you provided it to us. Upon written request we will remove your personal

information from our databases, except where legislation or regulation requires our retention of it

(for example, charitable giving history tied to income tax receipts). You may request a copy of your

information, request to delete your information, or request to remove yourself from our databases by

communicating with us via the contact information listed at the very end of this policy.




Service is the website operated by SKRABAN-DEARDORFF SYNDROME FOUNDATION.


Personal Data

Personal Data means data about a living individual who can be identified from that data (or from

other information either in our possession or likely to come into our possession).


Usage Data

Usage Data is data collected automatically and either generated by the use of the Service or from

the Service infrastructure itself (for example, the duration of a page visit).



Cookies are small files stored on your device (computer or mobile device).



We collect several different types of information for various purposes to provide and improve our

Service to you.



While using our Service, we may ask you to provide us with certain personally identifiable information

that can be used to contact or identify you (“Personal Data”). Personally identifiable information may

include, but is not limited to:

• Email address

• First name and last name

• Phone number

• Address, city, state, ZIP/postal code, province

• Cookies and Usage Data



We may also collect information on how the Service is accessed and used (“Usage Data”). This Usage Data

may include information such as your computer’s Internet Protocol address (e.g. IP address), browser

type, browser version, the pages of our Service that you visit, the time and date of your visit, the time

spent on those pages, unique device identifiers and other diagnostic data.



We use cookies and similar tracking technologies to track the activity on our Service and we hold certain



Cookies are files with a small amount of data which may include an anonymous unique identifier. Cookies

are sent to your browser from a website and stored on your device. Other tracking technologies are also

used such as beacons, tags and scripts to collect and track information and to improve and analyze

our Service.


You can instruct your browser to refuse all cookies or to indicate when a cookie is being sent. However, if

you do not accept cookies, you may not be able to use some portions of our Service.


Examples of Cookies we use:

• Session Cookies. We use Session Cookies to operate our Service.

• Preference Cookies. We use Preference Cookies to remember your preferences and various settings.

• Security Cookies. We use Security Cookies for security purposes.



SKRABAN-DEARDORFF SYNDROME FOUNDATION uses the collected data for various purposes:

• To provide and maintain the Service

• To notify you about changes to our Service

• To allow you to participate in interactive features of our Service when you choose to do so

• To provide customer care and support

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