Smiles Included: Navigating through life with our rare disease superheroes
This podcast features guests and experts across the rare disease spectrum that highlight how to bring out the best in our rare kids and showcase that we are not alone, but part of a great community of people supporting our rare children.
Miss something in the audio interview? Want to go back and jot a note down? To ensure communication access, we've had our episodes transcribed and made available for you to view, read, and even translate into your native language.
“Receiving the diagnosis was a
mixture of relief and grief.”
Emily Beauclair, mother of Joe (4), Connecticut, US
Please subscribe to receive periodic email updates on recent developments at the Skraban-Deardorff Syndrome Foundation during its exciting first year of activity. To get involved, please contact us.