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Smiles Included: Navigating through life with our rare disease superheroes
This podcast features guests and experts across the rare disease spectrum that highlight how to bring out the best in our rare kids and showcase that we are not alone, but part of a great community of people supporting our rare children.
“Receiving the diagnosis was a
mixture of relief and grief.”
Emily Beauclair, mother of Joe (4), Connecticut, US
Skraban-Deardorff Syndrome Foundation
14039 Hwy 74 E
Suite A6 #123
Indian Trail, NC 28079
Please subscribe to receive periodic email updates on recent developments at the Skraban-Deardorff Syndrome Foundation during its exciting first year of activity. To get involved, please contact us.
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