Smiles Included: Navigating through life with our rare disease superheroes
This podcast features guests and experts across the rare disease spectrum that highlight how to bring out the best in our rare kids and showcase that we are not alone, but part of a great community of people supporting our rare children.
“Receiving the diagnosis was a
mixture of relief and grief.”
Emily Beauclair, mother of Joe (4), Connecticut, US
It is our priority to keep families connected to our community and to share what’s new with the SKDEAS Foundation. Click on the Newsletter Sign Up below and register today!
The SKDEAS Foundation meets monthly and we'd love to have you join. We meet virtually on the second Monday of the month from 12:00pm-1:00pm Eastern Time (Holidays will affect scheduling). To join us, click General Meeting Sign Up below.
To view our most current IRS Form 990