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the important research that is necessary to help this incredible cause?

Please make your generous, tax-deductible contribution by clicking the button below.

It is our priority to keep families connected to our community and to share what’s new with the SKDEAS Foundation. Click on the Newsletter Sign Up and register today!

The SKDEAS Foundation meets monthly and we'd love to have you join. We meet virtually on the second Monday of the month from 12:00pm-1:00pm Eastern Time (Holidays will affect scheduling). To join us, click General Meeting Sign Up below.

Black Speaker

Smiles Included:

Navigating through life with our rare disease superheroes

Listen to our Podcast

This podcast features guests and experts across the rare disease spectrum that highlight how to bring out the best in our rare kids and showcase that we are not alone, but part of a great community of people supporting our rare children. 

Read the Transcription

Miss something in the audio interview? Want to go back and jot a note down? To ensure communication access, we've had our episodes transcribed and made available for you to view, read, and even translate into your native language.

Emily & Joe
Receiving the diagnosis was a
mixture of relief and grief.

Emily Beauclair, mother of Joe (4), Connecticut, US


Skraban-Deardorff Syndrome Foundation

14039 Hwy 74 E

Suite A6 #123

Indian Trail, NC 28079

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